"For the last ten years, I’ve basically tried to escape the heightened pain in my body, due to a rare skeletal disease called #KlippelFeilSyndrome" https://yhoo.it/2RZavW1 #ChronicPain#ChronicIllness#KFS
@Dawn_French#klippelfeilsyndrome My partner gets so annoyed with me because when we’re watching #vicarofdibley I know the script so well I just end up talking along! Thank you for providing this cherishable programme. Been watching for so long. Constantly on repeat!pic.twitter.com/MmljvmmBuP
Guys let’s not make fun of his appearance. He has #Klippelfeilsyndrome, a genetic defect that causes his neck bones to be fused together. But please feel free to make fun of his creepiness and horrible treatment of his victim, I mean fiancée.
Reflecting on #rarediseaseday2020. My Klayton has the biggest heart and loves like no other. #williamssydrome#1in20000 My Kade is one of the strongest I know and has taught me so much about perseverance . #klippelfeilsyndrome#1in40000
They are wonderfully rare.pic.twitter.com/Ni3623lwWm